Yay!!! No Hospital Stay for Emeline this time!

Emeline started December off with a bang. On the evening of November 30th, she fell asleep around 4:30 pm and slept all night through. I had to wake her up at 8:00, and even then she didn't want to get up. That is not normal for her at all. She is usually up much later at night, and up much earlier in the morning, so I was a little concerned. She fought me when I tried to get her up, and she stumbled more than walked down the hall to the bathroom. After she'd been up just a few minutes, she started vomiting. By then I knew the signs. I called our local Ped's office and told them I was on my way. We have been through this before, so we have a pre-arranged agreement that they will give her a shot if/when she needs one. They gave her her shot of hydrocortisone (solu-cortef) right away, and then I called our Endocrinologist's office in Iowa City. I told his nurse that Em had slept for over 15 hours, wasn't "waking" well, and had just vomited several times, but that she'd had the shot, so I was hoping I had caught it in time. She said we'd have to wait and see; she wanted me to call back in the afternoon and we'd talk then about whether or not we needed to head to the hospital. Meanwhile, I gave her a triple-dose of her oral hydrocortisone at the regular times (which is what I'm supposed to do), and watched her closely. And--drum roll here please--we did NOT have to go to the hospital! WooHoo! That was really a source of excitement for me, as it was the first time in the 14 months since Emeline had been diagnosed with Addison's, that she did NOT end up in the hospital from an Addisonian crisis. It gave me hope, that finally, FINALLY I was learning to catch it soon enough that we could handle it at home, and not have to go to the hospital in fear every time she threw up. (After almost losing her twice in the hospital because of Addison's, it is not something I took lightly.) So I am thrilled to report that, for the first time, we survived an Addisonian crisis and managed to avoid the hospital! We continued triple-dosing for 2 more days and then weaned back down to her regular dose, and Em came through it just fine! YAY!

What a way to welcome December!

Independence Day, Or, The Day She Told Mom "I Will Do It Myself!"

Since May of 2008, when Emeline had a seizure that resulted in her being diagnosed with hypoparathyroidism, routine bloodwork (aka labs) have been a part of Emeline's new "normal." Initially, she was going for labs twice a week, then once a week, then once every two weeks, and there we have remained, for the past two and a half years, pretty much.
When she was diagnosed with Addison's Disease last year, we went through a time of more frequent labs again, but that tapered off, and we are back to our every-other-week regularly scheduled programming.

Last week, Emeline took one step toward declaring her independence (at just 4 days shy of being 5 years old). For the past 2.5 years, I have gone into the room with her, climbed up into the chair, taken her on my lap, held her arm down, and (for a VERY long time) used my legs to keep her legs locked in, so she couldn't hurt the phlebotomists, when Emmie did her usual routine of kicking, screaming, wiggling, and fighting for all she was worth, trying to avoid the inevitable dreaded "poke." EVERY.SINGLE.TIME. she did this. Without fail. No matter who the phlebotomist was. No matter how kindly they spoke to her. No matter how many times I spoke with her on the drive to the hospital, telling her that it would only hurt for a minute, and then it would be over, reminding her that she would get 2 stickers when they were done. And yes, occasionally struggling to hold back my own tears as I sat there in the chair, holding my sweet girl down, hating more than she did, that she was having to endure it. But endure it she (we?) did, because there was no choice.

I have no idea what changed last week. But something clicked in Em's mind, and for the first time EVER, she took charge when we crossed the threshhold of the lab. Michelle, the phlebotomist came out, and greeted us both by name. (This momma has paid attention to the work schedules of certain people who do well with Emmie, and you'd better believe that I make a POINT of going when I know one of our "preferred providers" will be working! LOL) She told us to come on back, and so we both rose from our seats and followed her through the door. When we entered the little room, Emmie immediately turned to me and said, "No, Mom. Don't get up in the chair to hold me on your lap. I can do it myself. I don't need you to hold me down today while I fight you with everything that is in me. I can handle this on my own today, thankyouverymuch."

Now, if you know Emeline, you know that she really didn't say that. What she ACTUALLY said was, "No, Mom. ME. No Mom. BACK." (Luckily for you, I happen to be quite fluent in Emma-ese, and I am able to translate for you.) ;)

Michelle's jaw dropped open, and I'm certain mine must have hit the floor. I looked at Michelle a bit hesitantly, and she said, "I think she wants to do it herself today." I said, "That is EXACTLY what she wants." I looked and Em and said, "If you want to do it yourself, go ahead. Get on up there."

And that's just what she did. Without the slightest hesitation, she climbed up in the chair, pulled her sleeve up, and put the arm rest pad down. With not so much as a whimper or even one attempt at withdrawing her hand, she held it there through the poke, and long enough to fill the needed 2 vials. In her own words, she had told me, "I can do it myself." And that's exactly what she did.

 

 

 

ETA:
Some weeks, Em's labs can be done with what we call "the finger slicer."
Other weeks, it's the needle-in-the-arm routine. This week, it was a "finger slicer" week. :) It just depends on how many vials they need to collect. Finger slicer weeks are just 2 vials; needle-in-the-arm weeks are usually 4 or 5.